The Harley Jae Trust has raised over £180,000 since it was opened by chairman Joseph Rafter as a tribute to his son Harley Jae who suffered from a rare neurological condition, Harley was one of only two children in the entire world to have the condition at this time.
The Trust was set up in 2006 to support Harley with vital medical equipment that was required to aid in his development and make his life more comfortable.
On February 22nd 2013 Harley Jae sadly passed away and the Harley Jae Trust became a registered charity so that they could provide equipment to children at the Paediatric Critical Care Unit at the Queens Medical Centre.
Recently, the trust has purchased items such as Bugaboo pushchairs which has allowed children that have never left the ward to be able to finally go home and most recently iPads to further develop the incredible skills of the workers on the ward.
In September 2017 Stepping Stones became the Harley Jae Trusts first and only charity business parent and has made a monthly donation to the Trust. Our staff and children have also supported the Trust through the following events:
We held a sponsored Bear Hunt as it had been 40 years since ‘We’re going on a Bear Hunt’ was released. More information and some pictures from the day can be found here.
As part of our on-going Charity partnership, the children in Pre-School made some fantastic sourdough decorations. Jade (Pre-School Lead) and Tom (Financial Director) took these to the ward and helped the Harley Jae Trust decorate the ward with lot’s of trees, lights and our very own decorations.
If you’d like to join the Harley Jae Trust in fundraising, here are a few of the events they’ve got planned over the next 6 months.
The Harley Jae Cup – August 2019
Equinox24 – September 2019
The Harley Jae Christmas Ball – December 2019
You can find out more information about the Harley Jae Trust below.
If you’d like to support The Harley Jae Trust, you can visit their website here. Through their website, you can set up a monthly donation or even make a single donation.
Their information can be viewed on the Charity Commission Website.